Tuesday 24 February 2015

World Rare Disease Day

Something is happening on Sat 28th February, it's World Rare Disease Day (WRDD). We would like everyone to help create awareness. There are over 6000 different rare diseases worldwide. Duchenne Muscular Dystrophy is a rare disease. Its a progressive muscle wasting disease, taking every ability from children, NO treatments, NO cure & 
100% fatal. We are asking you to link for DMD. Linking two or more fingers. Be it your own, with someone else or ten others. Take a picture and share it with us. We need you to use hash tags (#)    Help us spread the word & create curiosity. Duchenne needs to end now. Help Save Our Children! But we need everyone on board, Especially YOU.
Upload your pics to.
https://www.facebook.com/caringforconnorcampaign https://twitter.com/caringforconnor
http://instagram.com/caringforconnorcampaign/
Thank you all xx



Monday 23 February 2015

Rare Disease Day 


Rare Disease Day is on the 28th of February. Duchenne (DMD) is a rare disease. We would like everyone to help create awareness on this day. We are asking you to link for DMD. Linking two or more fingers be it you own, with someone else or ten others. 

Take a picture and share it with us







We need you to use hash tags #Link4DMD #Fatal

Help us spread the word & create curiosity, Duchenne needs to end and now, save our children!

Everyone has fingers & phones, its free and so easy to do. So lets do it!! :) xx